ràng

让

bái huà bìng

白化病

huàn zhě

患者

bèi

被

kàn jiàn

看见

Albinism is a genetic condition present from birth. It is not contagious and does not affect intelligence.

People with albinism often have lighter skin, hair, and eye color. Their vision is often weaker, and their skin is more easily harmed by sunlight.

In Pakistan, many people with albinism face difficulties at school, at work, and in daily life.

Some students cannot see the blackboard clearly but do not receive large-print materials, suitable seating, or extra time for exams. Some people have knowledge and ability but are still rejected when looking for work because of their appearance and vision.

Sunscreen, sunglasses, and regular checkups can protect them, but some families cannot afford them.

More seriously, the government does not keep separate records of the number of people with albinism, so it is difficult to understand their needs and arrange the education, health care, and social support they require.

Advocates hope the government will collect more complete data, implement relevant policies, and allow people with albinism to take part in decision-making.

Being counted is only the first step. The real goal is for them to be respected, listened to, and given equal opportunities to study, work, and live.